A nosebleed may often be overlooked, but for some it should be a warning sign. June is Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month. Symptoms may be silent or range from frequent nosebleeds to gastrointestinal bleeding, lung and brain hemorrhages. Aterio-venous malformations (AVMs) in the lungs, brain and liver also occur in a significant percentage of persons with HHT and can be life-threatening or disabling.
HHTs a genetic disorder of the blood vessels that affects about one in 5,000 people across all ages and ethnic groups, 20 percent of those will likely suffer disability or death from the disease. Nine out of 10 in the HHT population are not yet diagnosed. On the other hand, with proper diagnosis and treatment severe symptoms can often be prevented or controlled.
Due to the bleeding, many persons with HHT require or become dependent on blood transfusions. Throughout June, LifeShare Blood Centers is holding blood drives for HHT awareness and replenishment. LifeShare Blood Centers in Baton Rouge, La. will include a replenishment drive for 10-year-old Mclinda Robertson of Denham Springs, La. Mclinda suffers from HHT and Von Willebrand disease Type 2M. As a result, Mclinda had an aneurysm last year that left her legally blind. During her treatment she had two blood transfusions. Though she still struggles with the disease, her eyes healed completely.
June 2 HHT Awareness and Replenishment Drive for HHT patient Mclinda Robertson
Winn Dixie Walker (28145 Walker South Rd) 10am-3pm on the LifeShare Bus
June 3 HHT Awareness Drive Wal-mart Prairieville (17585 Airline Hwy) 11am-5pm on the LifeShare Bus June 7 HHT Awareness Drive
Wal-mart Gonzales (308 North Airline Hwy) 12pm-6pm on the LifeShare Bus
To learn more about HHT, visit www.hht.org.
LifeShare Blood Centers regularly supplies blood components to 117 medical facilities throughout Louisiana, East Texas and South Arkansas. Founded in Shreveport, La. in 1942, it is a nonprofit community service provider governed by a volunteer Board of Trustees. LifeShare is a member of America’s Blood Centers and the American Rare Donor Program, is licensed by the U.S. Food & Drug Administration and accredited by AABB.